Sunday, January 10, 2010

2010 is going to be a great year

I hope no one ever has to go through what I go through on a daily basis. It is not officially 2010, and I have made it a resolution to stay more positive. Often, like anything else, it's easier said than done, but I am going to do my best.
Why is it so difficult? Am I simply an eternal pessimist? Someone trying to be emo, but failing miserably? An attention whore by proclaiming that life sucks? No, I wouldn't qualify myself as any of those things. Rather, I'm a social observer of life around me and what happens on a daily basis.
My life has been rather 'sucky,' for the last few years for one simple reason. I was diagnosed w/ multiple sclerosis at the humbling age of 23. While friends were getting engaged/married at 23, I was getting all too familiar w/ the proverbial 3 S's: steroids, spinal taps, special needs. I was put on more steroids than a professional baseball player, had a spinal tap which didn't come conclusive for MS but rather for a disease that affects less than .0005% of women in my ethnicity (south asian), and age bracket (23), and doctors chronically being troublesome about how i would need 'special,' assistance for the rest of my life.
What these doctors were unable to fathom was that I'm a tough woman...who rarely qualifies herself as 'special,' under negative connotations. I refuse to take pain killers b/c they contribute to the quiet health care crisis induced by recreational drug use. I rarely complain about the physical pain that the MS has caused b/c I come from a long line of doctors. There is a tremendous amount of guilt for letting my disease get as far as it did (MRI's suggest it's pretty bad). But I never forget the laughter and the insulting comments that were muttered by my own family when I'd question them about what was happening...Their only defense is, 'if it was that bad, you should've told your family physician.' As far as I know, when those 'closest ,' to you patronize and make fun of you for your ailments, and they are medical professionals, you don't disclose it to the outside world, fearing further embarrassment.
Now, at 26 years old, I'm single b/c every boyfriend post diagnosis couldn't handle dealing w/ the red marks at my injection sites, I'm unemployed b/c either I legally file for disability (although i refuse to qualify myself as such), and i'm an adult dependent on my dad for health insurance so in the lovely state of Delaware, i can't be an adult dependent, and have a job (such shit--- i'm almost be encouraged to be in disability, despite not being disabled, and subsequently, further burdening the tax payer). And I live w/ neurotic parents, who don't believe in failure, and according to them, I've done nothing to succeed.
I've more or less declared today that I don't want to speak to my father b/c nothing is ever good enough for him, and frankly, I'm too tired to be chronically blackmailed about my health insurance. Ironically, he's got his PhD in social work; I honestly thought until I was 9 years old that PhD was a slang acronym for phony doctor. Blame it on the language barrier (I didn't learn to speak English until I began school. Punjabi is my first language, followed by Hindi, then English).
Regardless of all of the horrific things in my life, I'm a staunch believer in almost anything Bernard Shaw has written. My favorite being, 'laughter is the best medicine; it's certainly cheaper than therapy.'
I don't know where this year is going to take me, or even what other awful things I face in the future. But I do not that 2010 will be a great year.....call it a feeling.